Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about Lupus.

How are your Flares?

I recently had one of the worst flares I have ever had. However, I kept questioning if I just had a stomach...

LUPUS

LUPUS is a "ghost" ailment. I feel terrible inside. I wish I could wish it away. The symptoms are so uncomfortable. Hands...

Cold Weather

I recently moved from a hot state to a cold state. There's bad weather (winter storm, winter weather advisory) here several times...

Fatigue!

There isn't a thing you can do to improve fatigue. I sometimes get up feeling fatigued! But usually I'm good waking up...

3 Questions - Do You Relate?

"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate. 2. Do...

Say it to yourself

If you could tell your pre-diagnosis self something that can help you today, what would it be?...

Bullous Systemic Lupus Erythematosus

I was diagnosed with Lupus (SLE) several years ago. Almost 3 months ago, I had an outbreak of blisters appear on my...

Vivid, nightly, disturbing dreams

I have had Lupus all my adult life, now aged 87, was put in Depression bóx' in my 30's and was not...

Undiagnosed and meeting with primary care. Feeling nervous.

Hello. I have had odd symptoms on and off over the years but recently I put them all together and now wonder...

Too long to tell..a very difficult disease

The madness of systemic lupus is incredibly complicated....

Categories

Select a category to find topics that interest you.