What are the terms to find a supportive partner

Hi, !

I hope you get some helpful feedback from other community members that are in situations like you described. In the meantime, I wanted to share some articles on the topic of relationships and Lupus that I hope you find useful. Here's one about being in a commited relationship and sharing your Lupus diagnosis -- https://lupus.net/living/relationships. And here's one specifically about communicating --https://lupus.net/living/communication. Also, each relationship is unique and what works for one couple may not work as well for another. My husband and I prefer very clear, very specific communication, like, "Honey, I have a really bad migraine today. I am going to lie down for a couple of hours. If you wouldn't mind tidying up the kitchen, I would be appreciative." Not that my husband needs to be told to ever clean up the kitchen, but if there's one specific task that would mean a lot to me, that's the one I will mention, if that makes sense. Or, he will say, "I just need to go to bed early tonight" and I do my best not to disturb him too much. That's what works for us. But, we've been married for 25 years and it's taken a long time to find the rhythm that works for us. Also, if your partner is unfamiliar with the spoon theory, you can always share this article (or read the article and share the jist of it with him/her) -- https://lupus.net/living/spoon-theory. It's a good way to explain living with a chronic condition to folks that don't. Again, I hope some of this information is relevant for you!

Best, Erin, Team Member.