Concerned About Your Future
I want to talk about when there are things
said negative about people wanting to think people actually want this disease. I thank God for every good and not so good day God have given or give me. Every person should be treated the same way. We are known to have so many different sickness than caucasian people yet we are not as educated or treated with the same meds as them when we have them so unless we internet search what are we to do we are treated as though we have waited our whole life to be sick and told it’s nothing that’s why we thank more about our health. I know it will be said everything is always radical but in some cases it is Lupus can destroy you if it’s new to physicians how are we supposed to feel. It’s like begging someone you pay to discuss test and your health issues can someone please help the people who want to feel good be well informed about their health issues.
I am glad you took the time to share some of your thoughts on living with Lupus here,
! You're right; the research, treatment, and support for people of color is historically NOT good. Too many individuals have their symptoms doubted or dismissed and doctors still harbor biases that they shouldn't.
It's frustrating, to say the least. And it makes the burden of living with a chronic condition that much harder.
I thought you might find this compilation from some of our health leaders on their experiences dealing with chronic health conditions as people of color -- https://lupus.net/living/race-ethnicity-patient-experience. Thank you again for bringing this important topic up within this community. You are not alone in this and I appreciate your voice!
Best, Erin, Team Member.
