Stories

It took 29 years to definitely be diagnosed with systemic lupus. I was nearly 31, (1979) when I was pregnant with my second daughter. Lupus was questioned due to toxemia...

I was diagnosed with lupus in 2021 after 5 long months of pain and no answers. It was a relief to at least have a diagnosis. However, there’s been a...

I would describe myself as a miracle; a determined person who has overcome and survived many physical, emotional, and financial setbacks in life. If I was an animal, I would...

I was diagnosed with SLE lupus and rheumatoid arthritis when I was about 28. Before lupus, I was very energetic, upbeat and always full of life. I had 4 children...

I was diagnosed in 2000 with SLE lupus. I had butterfly patches on my face but eventually they disappeared. I’m always exhausted tired and drained out. 😩 I’m a caregiver...

I was recently diagnosed. It's been exhausting and overwhelming. I'm just trying to cope with it as best as I can. I have Sjogren's, too. Most days I'm in bed...

I was officially diagnosed with lupus in March after suffering from pain and fatigue for years. After a diagnosis of psoriatic arthritis in 2017 and then another doctor dismissing that...

I got diagnosed back in 2015. I didn't have any insurance, so I couldn't afford to get any medication. I stayed going back and forth to the emergency room. I...

Hi, my name is Juanita. I was diagnosed with lupus in 2016. My doctor did not say what kind of lupus. All he said was it would progress. My body...

I was everywhere. I don't drive, but I was present at every event. Every day, I would post whatever activity I participated in on Instagram and Facebook. In 2020, I...

No doubt, a diagnosis of lupus is devastating AND a relief to finally get a name to your pain. I have had to learn to change my priorities in life...

Recently diagnosed with Lupus SLE. My primary doctor, whom I've seen for 8 years was really listening to me. Suddenly I started feeling ALOT more tired than normal. I thought...

Hi, I’m 21, turning 22 this year. For almost all my life, I’ve been in pain but never knew why. It’s like any other lupus story. I can trace symptoms...

I have just been diagnosed in March. Learning how to do everything I can to reduce my flare-ups and reactions is a new journey for me. Every day I experience...

There isn't enough time ever. I found out on my own at requesting certain labwork for Lupus and Sclerodema in 2009. Here we are, 14 years later. No drugs, no...

My daughter was diagnosed with Lupus Retinopathy. It all started when she woke up after a low-grade fever 99.2. She said she saw spots. When she looked at you straight...

Can a disease make you stronger? I started with Fibromyalgia, added Systemic Sclerosis and then Lupus. A few more exotic conditions are thrown in there, just for fun. I've spent...

When I was born, my mother had no idea that I had Lupus; After 3 to 4 Hospital stays for Pneumonia, we continued to search for answers. It was not...

Ever since I can remember I always knew something was off for me. I would frequently get sick and go through strange episodes of different symptoms that would go unexplained...

Hi, I was seven years old when my parents where told I had lupus. I am now sixty years old. I found when was using almost all natural medicine my...