Stories

I was diagnosed when I was 20, and I am now only still 21, so this is all very new to me and I’m finding it hard to navigate through...

I've learned to deal with so much discomfort in so many physical ways, that now my mantra is "it will get better", even if I just tell myself that to...

I'm always in so much pain and I hate when my family asks "what hurts?" I don't even know where to start, so I usually just say everything. If I...

My journey started back in high school. I got an incredibly mild case of mono. I didn’t even miss a day of school for it! But then I never got...

My daughter was diagnosed at age 15! She is now 30 years old! She would just lay on the floor and cry! As a mother, it would crush me that...

I always felt like something was off. From always being more tired than others, or years of kidney problems that no one could figure out, to even my terrible pregnancies...

In 2011 I was in Kansas and hurt my back getting in a boat. I was sunburned so badly. By August that year, I got hurt again and kicked in...

Most likely I was diagnosed with Lupus back in 2009 after I was nearly killed from a horrible Motorcycle wreck, that another person in a car had caused. I was...

I was diagnosed February 2021. My family does not understand lupus and won't read about it. They think I complained about daily pain. They think something can be done. I...

I was an electrician. I can no longer do that because I can't remember it, and my body will not hold out. It takes all my energy to make it...

Hi, my name is Michelle I was diagnosed with SLE lupus and fibromyalgia 4 years ago. Doctors said I’ve probably had it since my 20s though, but without having insurance...

I'm 35 years old was diagnosed with lupus April 2002. I had move from a regular high school and go to a school where I could work at my own...

I have suffered from Lupus for over 30 years. At some points, I thought I was losing my mind! The doctors wouldn't take the time to actually listen to me...

My name is Julie. I have scleroderma lupus. The hardest thing is fatigue. After going to the store, I climb onto my bed and crash for hours. I am so...

I am 46 years old and was diagnosed with Lupus SLE in 2000. I’ll never forget it. This was at the time I lost my best friend, my grandmother. It...

I started having problems when I was about 17. I was told most of my pain, soreness, and problems were from my rough teenage years. (I was in rodeos and...

I was diagnosed with lupus nephritis last July. After years of not knowing I had lupus, I went on short-term disability for six months. Because I still didn’t feel well...

One day about 15 years ago I woke up with what I thought was the flu. Body aches, muscle joint pain, and fatigue. Oh, the fatigue! It was horrible. After...

It was 2006, my dermatologist promised me he would help me. Yes, he did, absolutely. I am American Indian. I had 1 little pimple on my face. My doctor cut...

I look back 11 years ago, when I was diagnosed with Mixed Connective Tissue Disease and I honestly am blessed it flared up when it did. I lost my 11-year-old...