Lupus Doesn't Define Me

I started having symptoms of SLE in 2016. I was just 16 at the time.


In the beginning, I had mild joint pain and a horrendous case of scleritis, which was misdiagnosed as pink eye. Eventually, a few months later that pain had pretty much subsided, thankfully.

The following year my joint pain got worse. I was still in high school, I ran cross country. I knew something was wrong. It hurt so bad to run but I had a very difficult time explaining it to my coach and parents. It wasn’t just one thing that hurt- it was everything. I was so tired.

Surviving high school with lupus

Finally, at the end of senior year I ended up missing pretty much the whole month of May due to how sick I was. I was at the doctor's office literally every other day. I had to quit both jobs I was working. Three days before I graduated high school, I was diagnosed, Lupus.

Dealing with denial

I definitely had denial at first but even though it is a difficult thing to deal with every day, I feel it has bought me closer to God and those I love. I am thankful to be here and feeling better recently. Lupus doesn’t define me but it is a big part of my new life. I am thankful to be here and learn how to do things in a new way. :)

Interested in sharing your own diagnosis story, treatment experience, or another aspect of living with lupus?

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Community Poll

Do you read through your insurance policies and ask questions?