New Here and Seeking Advice
Last updated: April 2022
Light bulb went off! A couple weeks ago I finally gave in and started researching what issues I have then everything made sense.
Looking back I have had symptoms of lupus since my early 20s. I never questioned anything or any doctors and honestly believed my mother when she said I was a hypochondriac.
Doing my own research
I am 48 now and have major symptoms of Lupus. With my research I assume I have been suffering for years, I blamed stress, diet, allergies, no health insurance, and everything else on me staying sick without questions about autoimmune disease. I never addressed the real stuff, the weird stuff, never wondered why or what was going on until now.
Lately, it has gotten to the point where I am barely functioning. Flu-like symptoms, 9 COVID tests in the last year, joint pain that caused me to not get out of bed. Now I am having all kinds of problems with my mouth, sores, peeling and swollen lips, split corners, puffy and crusty eyes.
Preparing for testing
I feel like I am losing my mind. I am going to see my doctor for blood test and to discuss all this. I have young children and it's a wake-up call.
Any advice on diagnosis and symptoms and how to deal with it is welcome!
Interested in sharing your own diagnosis story, treatment experience, or another aspect of living with lupus?
Have there been things you have learned along your lupus journey that you wish had been explained to you by a healthcare provider earlier?