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Read conversations, start a discussion, and connect with others about Lupus.

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Invisible Disability Discrimination

For those receiving SSDI benefits, what are your main symptoms and how severe are they? Have you dealt with others not believing...

Active yesterday

Lupus Plus: Do you have additional health issues?

What are other health issues you face besides your lupus diagnosis?...

Active yesterday

Mouth sores/ulcers

One of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to...

Active 2 days ago

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Active 6 days ago

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real...

Active 7 days ago

New Brand of Hydroxychloroquine

New brand of hydroxychloroquine doesn't seem to be effective. I am experiencing pain in joints that I have not had with my...

Cold all the time

Is anyone else suffering from being cold all the time? I am always cold. I wear long sleeves to work, and everyone...

Have dry patch of skin on face

I have had a round patch of really dry skin on face for months that is slightly raised is this lupus related...

Sun & Lupus

What's the best sunscreen ,I currently have Sun Bum and am going to the Dominican ....

Twitches/Muscle Spasms, Losing Grip, and Spatial Awareness?

1. Has anyone else ever experienced muscular twitches - they're not limited to one place, are sporadic, and I've noticed that they...

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