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Forums

Read conversations, start a discussion, and connect with others about Lupus.

Positivity

It can be tough to stay positive when dealing with the ups and downs of lupus. What are some ways you like to lift yourself up on especially hard days?...

Internal tremors

I have been experiencing internal tremors. Is it normal to experience tremors with lupus and is there anything I can do to make them stop?...

Knee replacement

Wondering if anyone with Lupus and fibromyalgia have had a total knee replacement. It is done on outpatient basis now. They have you walking on the same day. Wondering how...

Face Wash

Hi everyone. Just wondering if anyone has found a soothing face wash liquid that they find is good for skin with butterfly rash...

Methotrexate

Is anyone having issues getting their methotrexate since Roe-v- Wade was overturned? Are you worried at all that you won’t be able to get the meds you need as a...

Males trying to conceive w/ partner while on heavy meds

I am a 33 year old male with lupus nephritis. I am on cellcepts (hydroxychlorquine, lupynis, Losartan pills to control my lupus. I was told that trying to conceive with...

What Have You Learned

We all can learn something daily about those around us and ourselves. As you walk on your lupus journey, What have you learned about yourself that you never knew?...

Hydroxychloroquine

Hi, I'm just newly diagnosed and have been prescribed hydroxychloroquine in tablet form. I've heard that it's one of the baseline medications for many autoimmune diseases, and I was wondering...

Newly diagnosed

Hiya, I just got diagnosed with early, mild, evolving lupus on Wednesday. It felt quite sudden as that was my first appointment with rheumatology, and after researching a bit more...

ANA positive 1:160

Hi all I’m new here. I have been treated for seronegative RA for six years and biologics haven’t helped. I finally got my rheumatologist to do an Avise test. The...

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