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Calcinosis cutis

I have had SLE for 36 years and have developed, amongst many other things, calcinosis in my finger joints and most severely on my knees. In 2020 I had surgery to remove a large amount from my left knee because of infection. Since then my right knee has been continuously developing a very large growth of calcinosis that is clearly visible to the eye and on xray. I have also had calcinosis surgically remove from 3 fingers and my thigh in the last 6 months. The calcinosis on my knees causes my legs and knees to ache keeping me awake at night and reducing me to tears. Does anyone else suffer with this type of pain that can offer solutions for easing the pain as I feel that doctors have put me in the "too hard" basket.

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