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Read conversations, start a discussion, and connect with others about Lupus.

Do you experience brain fog? Please share your experience with us!

Let's have a frank conversation about brain fog. Brain fog is often described as relentless, frustrating, and a major source of fatigue for up to 60 percent of people living...

Angry Much 😡

What do you do when you get so frustrated and angry with your body because it either doesn’t operate how it used to or won’t do what it needs to...

What helped my lupus

Update: I'm having lupus, affecting my heart, after I started walking about 20k meters every day (First 7 days, now only 10K in the forrest in the morning), since I...

Avise Blood Panel

Hi, I am brand new here and wanted to get your thoughts on this. I am 42 and I've been having bilateral joint pain, muscle pain, and neuropathy in both...

Assistance with ANA test results

I have been having symptoms of inflammatory arthritis for over 5 years. I get intermittent episodes of burning pain in my spine along with pain in front hip bones, shoulders...

Lupus and Cutaneous Mastocytosis

Hi I have had SLE since I was 17yrs old. I am now 67 and a year ago started having severe hives. After having allergy skin tests coming back negative...

Questions to ask a rheumatologist?

For many managing lupus, it can be difficult to find the right doctor. What questions would you like to ask a rheumatologist that specializes in lupus?...

Favorite Moments 2022

We can often focus so much on our pain and we forget about the good that have happened. Do you have any favorite Moments from 2022 to share?...

Can someone help explain this?

I see doctor Monday but wondered if someone might explain this to a newbie Thanks...

Anyone struggling with gift ideas?

Christmas is in 14 days! I've only bought two gifts so far. Between lupus pain, fatigue, and brain fog, who has time to think of gifts for their family? Or...

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