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Read conversations, start a discussion, and connect with others about Lupus.

Taking notes to the doctor.

I always have notes for my doctors about my health status and requests I have. Usually way too many! And I've always...

Lupus Awareness Month

If you could craft the most helpful lupus awareness month, what type of activities would you include?...

Diagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us.

If you've been diagnosed with TLE, we want to hear from you! People in the past have told us that their TLE...

Doctor Care

My rheumatologist will only help with prescribing Mycophenolate and taking blood & urine every 6 months. I'm deathly allergic to Plaquenil or...

My body is swollen all the time.

I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since...

Hair thinning

Has anyone experienced thinning hair on one side? I know hair thinning is typical for older women but this started when I...

Swelling in my feet and legs

Does anyone have trouble with swelling in your feet and legs if so what do the Dr's do for you is this...

Brain fog

What is brain fog...

Does anyone have problems with “acne” on face, arms or legs?

I am 41 and have had breakouts my entire life but seems to be worse lately especially on my upper arms. Some...

Cart T-Cell Therapy for Lupus/Autoimmune

After taking over a decade to diagnose, and now having lived with Lupus for a number of years, which in my case...

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