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Read conversations, start a discussion, and connect with others about Lupus.

I Have Regional Lupus with Epilepsy

I am 43 years old this year. I have regional lupus with epilepsy. anyone similar to me? Epilepsy has followed me since childhood. and lupus about 10 years ago. Recently...

Urinary Frequency

Does anyone else have bladder issues? I'm up between 3-5 times a night....

ANA positive 1:160

Hi all I’m new here. I have been treated for seronegative RA for six years and biologics haven’t helped. I finally got my rheumatologist to do an Avise test. The...

I Need You To Know

What do you think is the most important thing others need to know about having lupus?...

Any Ehlers Danlos / Lupus members?

My rheumatologist is beginning to look at ED as a comorbidity for me. I have a history of congenital heart defects. Dx Lupus in 2001. Other dx include fibro, Sjogren’s...

Newly Diagnosed and Feeling Sick

Hi guys! How is everyone? I was recently officially diagnosed with Lupus (about a month and a half ago) and started Plaquenil - I have not noticed a difference, but...

Blood test advice

Hello! Thank you for reading my post! I need some advice. I have been experiencing joint pain in my ankles, wrists, hands, and pain in my legs. I tested positive...

What type of clothing is best when dealing with a lupus flare?

Clothing can create challenges for those living with lupus. Maggie shares 12 Tips for Dressing with Lupus - https://lupus.net/living/clothing-tips including slip-on shoes and work out clothes. What tips would you...

Are you living with CREST syndrome?

Thank you to community member penny130 whose story (linked below) inspired us to look further into the connection between CREST syndrome and lupus - https://lupus.net/stories/car-wreck. This article provides some information...

Male Here

I it's understand possibly rare for men to have lupus? I have had symptoms for years, diagnosed 6 months ago and have to wait another 3 months to see a...

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