Newly Diagnosed and Feeling SickHi guys! How is everyone? I was recently officially diagnosed with Lupus (about a month and a half ago) and started Plaquenil - I have not noticed a difference, but...Reactions0reactionsComments2 repliesSymptoms
Blood test adviceHello! Thank you for reading my post! I need some advice. I have been experiencing joint pain in my ankles, wrists, hands, and pain in my legs. I tested positive...Reactions0reactionsComments2 repliesSymptoms
What type of clothing is best when dealing with a lupus flare?Clothing can create challenges for those living with lupus. Maggie shares 12 Tips for Dressing with Lupus - https://lupus.net/living/clothing-tips including slip-on shoes and work out clothes. What tips would you...Reactions0reactionsComments14 repliesTips & AdviceSymptoms
Are you living with CREST syndrome?Thank you to community member penny130 whose story (linked below) inspired us to look further into the connection between CREST syndrome and lupus - https://lupus.net/stories/car-wreck. This article provides some information...Reactions0reactionsComments2 repliesTreatmentSymptoms
Male HereI it's understand possibly rare for men to have lupus? I have had symptoms for years, diagnosed 6 months ago and have to wait another 3 months to see a...Reactions0reactionsComments1 repliesSymptoms
Do you experience symptoms of lupus but do not have a diagnosis?Share your experiences of symptoms here....Reactions0reactionsComments11 repliesDiagnosisSymptoms
Is anyone coping with myocarditis?Community members are asking about a recent myocarditis diagnosis. Does anyone else experience this? How do you cope?...Reactions0reactionsComments0 repliesSymptoms
Lupus Awareness Month 2021What is the most important thing you can think of to share about lupus awareness? What do you need people to know about your lupus journey?...Reactions0reactionsComments7 repliesAwarenessSymptomsDiagnosis
Waiting on Diagnosis I have been trying to get a diagnosis for 5 months. I spent a few months with a neurologist that thought I had MS, I’ve had so much blood work...Reactions0reactionsComments5 repliesSymptoms