Forums

Read conversations, start a discussion, and connect with others about Lupus.

Active today

Always sick

Does anyone else's family always complain about you being sick?? If I can't go somewhere if I'm sick and they just don't...

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Simple joys or special occasions?

It definitely felt like a long, gloomy winter for most of us. What is one small comfort or event you are looking...

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What do I tell my Boss

At work I am constantly overwhelmed and not sure what to tell my supervisor, when I’m good to do my job but...

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Should I start methotrexate?

I’m 77 - have had three major joint operations in this past year; left rotator cuff, left partial hip replacement (not a...

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What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...

Active 3 days ago

sleep

how do you get a good nite sleep when the pain wakes you up? do not like sleep aids....

Active 3 days ago

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Active 3 days ago

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

Active 3 days ago

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as...

Active 3 days ago

"Planned Underachievement"

Extreme fatigue was one of the symptoms (along with Raynaud's and sunlight sensitivity) I had when first diagnosed with Lupus about 10...

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