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Shame and Guilt

Do you have shame or guilt when needing to rest?...

Lupus

I have been diagnosed with RA/Raynauds, and Lupus just recently. I'm not sure how I can deal with more. I can barely keep up. My husband has spinal cord injury...

Protecting Your Peace

The holidays have rolled in and the stress level can be high. So you have any tips to protect your peace and not stress during the holiday season? One tip...

Hello!

Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but got sick at 15. I was born with...

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

Rest is the only answer!

When I get a flare, which are much worse in the summer months! The only thing that really helps is rest! Family really don’t understand and still expect you to...

Featured

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

My diagnosis 24 years ago

My diagnosis of Lupus 24 years ago wasn't easy at first. It all started in class during my senior year of high school. My government teacher saw I was fatigued...

What do you do?

Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...

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