Active todayRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions0reactionsComments75 repliesCopingJoint PainSymptoms
Active todayProtecting Your PeaceThe holidays have rolled in and the stress level can be high. So you have any tips to protect your peace and not stress during the holiday season? One tip...Reactions0reactionsComments26 repliesCopingMental HealthTips & Advice
Active todayThe Wicked MovieI am a huge Wicked/Wizard of Oz fan. My oldest sister got me hooked at a very young age. Without any spoilers, I can totally identify with Elphaba. (Wicked Witch...Reactions0reactionsComments1 repliesCopingTips & Advice
Active 7 days agoHoliday TipsWell the Holidays are here. What are some of your holiday tips? My main tip is to remember that you don't have to do it all and taking a break...Reactions0reactionsComments3 repliesCoping
Shame and GuiltDo you have shame or guilt when needing to rest?...Reactions0reactionsComments128 repliesCoping
Keeping personal journal to learn about flaresI was diagnosed with SLE in June 2024 and have been taking hydroxychloroquine since then. It seems to be working. However I am having a flare now and don't know...Reactions0reactionsComments3 repliesCopingTreatment
CopingWhat’s the most helpful piece of advice you’ve received about managing lupus symptoms, and how has it impacted your daily life?...Reactions0reactionsComments3 repliesCoping
Lupus Life HacksAre there any lupus life hacks that you think every lupus warrior should know? One of my most important lupus life hacks is keeping a food, mood, and symptom journal...Reactions0reactionsComments8 repliesCoping
FeaturedIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions0reactionsComments195 repliesAwarenessCoping
Change on seasons How do you all handle the changing seasons? The weather can definitely affect our bodies so how have you all learned to combat any issues that come along?...Reactions0reactionsComments2 repliesCoping