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Read conversations, start a discussion, and connect with others about Lupus.

Active today

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

Active yesterday

Constant fatigue

Daily, I am extremely tired. Does anyone have tips to help?...

Active 2 days ago

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...

Active 3 days ago

I have sle lupus and rheumatoid arthritis

I have sle lupus rheumatoid arthritis I am taking Saphnelo infusion hydroxychloroquine and Azathioprine I’m also going through perimenopause I heard about...

Active 4 days ago

Chronic UTI’s & lupus nephritis

I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently...

Active 6 days ago

Family Support

How do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus...

Dry mouth with watering

Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I...

Lupus symptom or not?

Just curious… does anyone else have times when their tongue is painful, like it’s been burned? When this happens there are no...

Altered Senses From Lupus

Has anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here...

Digestive problems

Anyone have problems with the digestive track? I have been on antibiotics for about 10 months now and I feel horrible and...

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