Stories

Hi, my name is Jenn and I’m reaching out for help for my family. We are normally not the ones to ask for any help. We always want to be...

It took 4 years to get diagnosed with Lupus, I was told I was depressed and didn't know I was depressed... Even though I had terrible burn blisters all over...

I miss her! The “her” is me, well, the old me. The one that woke up in the morning with a long list of to-dos, a cup of coffee in...

Hello all, I am in Australia and until 2019 lived a healthy and active life. I have had an underactive thyroid for years (15) or more but have never been...

Hi, I was diagnosed with RA last September, then LUPUS last October & am on daily medication (prednisolone, betolvex & Plaquenil) and weekly medication (Methotrexate followed by folic 2xa week)...

Advocates for Lupus are us 4 Sisters here in Louisiana. Once the 3 sisters' biological mother passed at an early age of 30 in late 1965, leaving six kids to...

Hi all, I am going to tell you right away that I am not a USA citizen. I live in Europe, close to Brussels, which is considered it's capital by...

Hi, for many weeks now, I seem to be suffering from something I can only describe as nerve pain at night. This keeps me awake most of the night it...

I wasn’t diagnosed until I was 30, but I have had symptoms since I was 10 yrs old. All the other kids got to go to town to the pool...

Hi sorry to put this, but my feet around my ankle area drives me mad with this rash. It goes up the back of my ankle and on top of...

I was officially diagnosed with SLE early this past November, although it had been suspected by doctors for about a year. I am 66 years old and have been suffering...

I was diagnosed with lupus in October 2019 and it’s been rough. Every time I try and explain it to a few family members and especially my husband. He thinks...

I have been suffering for many years with lots of symptoms... They keep telling me I have fibromyalgia. I have been seen by a rheumatologist who told me that it...

I’m a 62-year-old white male. For the last 17 years, I’ve been treated with multiple surgeries on my spine, from my neck to my lumbar. The doctors thought it was...

I was diagnosed with MS in August 2007 at the age of 60. Then 2 months later, I was diagnosed with Lupus. I also have Sjogren's syndrome, Fibromyalgia, Arthritis, and...

I've been ill for years with joint pain, inflammation and loads of other things... The doctor keeps saying it's just my fibromyalgia. I'm having so many flares at the moment...

I was diagnosed with Systemic Lupus erythematosus in January this year. Since then I've had better days and worse days. Lately, my skin has been so itchy. When I scratch...

Living with life after finding out I had lupus has changed my life for the worse. My family life is not what it used to be, and my husband acts...

After being diagnosed in 2008, I spiraled out of control and so did my marriage. My body was fighting against me, and my husband didn't understand me. Spending month after...

First, they thought I had environmental poisoning. I was finally diagnosed after another 5 years of going to different doctors, just for all of them to say "I don’t know...