Scary MomentsDisclaimer Triggering question. Please share only if you are comfortable and it doesn’t cause you stress. I often look back to see how far I’ve come and some issues still...Reactions0reactionsComments4 repliesAnxietyCoping
Stress and the effects on lupusJust got displaced from hurricane Ian relocated also dealing with an ex husband who is cyberstalking me...Reactions0reactionsComments0 repliesCoping
Positivity It can be tough to stay positive when dealing with the ups and downs of lupus. What are some ways you like to lift yourself up on especially hard days?...Reactions0reactionsComments7 repliesCopingMental HealthTips & Advice
Who experiences this? (Need comfort and advice) I was wondering if anyone here experiences the same symptoms I have? I have been having cardiovascular and digestive troubles the past few days. My blood pressure goes down while...Reactions0reactionsComments4 repliesMental HealthCopingSymptoms
Exhausted and defeatedTonight we are supposed to be going to dinner for my fiance's and mother in laws birthday and I literally can not get the energy to get off the couch...Reactions0reactionsComments3 repliesCopingAnxietyButterfly Rash
Waiting on an official diagnosis I wish I could put up more pictures I guess I’ll have to do a different post. I am currently being evaluated for lupus. I had to do one more...Reactions0reactionsComments2 repliesCoping
Medication Denied Just looking for some advice. In addition to lupus, I’ve also been diagnosed with congested heart failure, hypotrophic cardiomyopathy. Afib, and pulmonary hypertension. For years I was on plaquenil ...Reactions0reactionsComments3 repliesTreatmentCopingCaregiving
World Lupus Day #putonpurpleWorld Lupus Day is celebrated around the globe on May 10th, honoring those living with lupus. On world lupus day, advocates from around the world are calling for more research...Reactions0reactionsComments1 repliesAwarenessCoping
Newly diagnosedHiya, I just got diagnosed with early, mild, evolving lupus on Wednesday. It felt quite sudden as that was my first appointment with rheumatology, and after researching a bit more...Reactions0reactionsComments2 repliesCopingDiagnosisTips & Advice