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Read conversations, start a discussion, and connect with others about Lupus.

Exhausted and defeated

Tonight we are supposed to be going to dinner for my fiance's and mother in laws birthday and I literally can not get the energy to get off the couch...

Waiting on an official diagnosis

I wish I could put up more pictures I guess I’ll have to do a different post. I am currently being evaluated for lupus. I had to do one more...

Medication Denied

Just looking for some advice. In addition to lupus, I’ve also been diagnosed with congested heart failure, hypotrophic cardiomyopathy. Afib, and pulmonary hypertension. For years I was on plaquenil ...

World Lupus Day #putonpurple

World Lupus Day is celebrated around the globe on May 10th, honoring those living with lupus. On world lupus day, advocates from around the world are calling for more research...

It's Giveaway Time!

One lucky winner will receive a pair of Warmies microwavable slippers! Get more details about the giveaway here.

Newly diagnosed

Hiya, I just got diagnosed with early, mild, evolving lupus on Wednesday. It felt quite sudden as that was my first appointment with rheumatology, and after researching a bit more...

Awaiting results

I will soon have an appointment with a 2nd rheumatologist. I finally showed a red flag on the ANA test. It suggest systematic lupus. All the while I was diagnosed...

Can't live without...

As you battle lupus daily what is something you can't live without? Fill in the blank, As I battle lupus day to day the thing I can't live without is...

I Need You To Know

What do you think is the most important thing others need to know about having lupus?...

Asthma with Lupus

I have had a few Asthma episodes in the last two years (try to see a pulmonologist in Covid world. Ugggh). Attacks are not severe enough to be life-threatening but...

Holiday Blues

How are you all dealing with any holiday blues that pop up out of nowhere? What are some tips and tricks to get past the holiday blues?...

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