Always sick

Hi, !

Sadly, I do think at least a few community members can relate to what you shared. Sometimes, friends and family just don't get it. They don't understand that you may feel fine one day (or one hour) and feel completely drained and lousy the next. And, they can't always see the symptoms you are experiencing (fatigue, pain, itching, etc), let alone understand how those symptoms are making you feel.

This article on when your loved ones don't get it might resonate with you -- https://lupus.net/living/family-friends-accept. And here is one conversation from our forums on the topic of unsupportive family -- https://lupus.net/stories/no-support-system.

One of our health leaders wrote a great piece about what people with Lupus NEED from their family and friends and I thought you might find it relatable -- https://lupus.net/living/letter-friends-family. I wish every person had the support and understanding they needed to navigate a life with Lupus. And, while it's definitely not the same as support from those closest to you, please know this community is here for you anytime.

Best, Erin, Team Member.

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I'm saddened to hear you are not getting the support you so need and deserve.
My heart goes out to you.
I know Erin provided some helpful information. I just wanted remind you that you are not alone, this community understands and is here for you.
My best, Doreen (Team Member)

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I just wanted to check in and see how things are going.
Always know this community is here for you. Reach out anytime.
~Doreen (Team Member)