Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about Lupus.

Peripheral neuropathy

Has any dealt with peripheral neuropathy? It started with my feet and then my hands and now it seems it is attacking my skin all over my body. My skin...

Shortness of breath

Hi, I hope you are all surviving this winter. I just have a question and wanted to see if anyone else experienced shortness of breath during a flare? Seems it...

Hair loss

My daughter’s been diagnosed with stage 2 lupus and along with other issues she is suffering hair loss. I wondered if anyone else here suffers this and what was a...

Optical hypertension and fast growing cataracts

This last eye exam, the opthomologist said my cataracts had grown fast and I was suffering from optical hypertension. He said I needed my cataracts removed immediately. As I researched...

Nocturia

Does anyone have to get up 5 times a night to pee? I've tried to stop drinking several hours before bed and I still get up several times a night...

Anyone else have heart issues?

Before I begin - my insurance is denying me for a cardiologist. I’m working on it. This is kind of a follow up to my previous post. The fever thing...

Does anyone suffer from constipation?

Hi all. I'm on vacation with my husband and son. Dealing with pain and fatigue have been difficult enough but now I'm constipated, too. I feel bloated and nauseous. I...

Lip Rash

I have only ever had the signature butterfly rash on my face once. That was the start of the diagnosis for me. But I have had an unusual rash on...

Face Symptoms and Steroid Side-effects

This post was originally written by a community member (@jan1956) as their status update and has been reposted in a forum format to encourage community conversation and support! "Hi I...

Benlysta

Hi everyone, my journey began in 2009. I wasn’t formally diagnosed with Lupus SLE until 2014. I was in denial for a long time. I took hydroxychloroquine for several years...

Categories

Select a category to find topics that interest you.