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Read conversations, start a discussion, and connect with others about Lupus.

Uncontrolled movement

Has anyone had issues with uncontrolled body movements? I catch my toes constantly moving up and down and have hand spasms....

Does anyone deal with insane nausea

Four years now I have been doing with Extreme nausea and violent vomiting at least once or twice a month. I will stay sick for days. Sometimes a week or...

What are signs and symptoms of lupus

I was diagnosed 5 or 6 years ago with moderate lupus. I've been hurting for a long long time but didn't associated with that because I really don't know anything...

Raynaud's

Raynaud’s disease (also known as Raynaud's syndrome or Raynaud's phenomenon) is a condition in which the tips of the fingers or toes turn white, blue, red, or purple when exposed...

Asthma and Allergies

It's been about 2 years since my lupus symptoms started. During that time, I've had several severe allergic reactions (anaphylaxis, rashes) to drugs and my asthma goes off the rails...

Should I be worried about unexplained bruises on the wrist, knuckle and elbow of one arm?

Hi all 👋 really happy to have found this community, as I’m a bit stumped and could do with another pov (or two!). I’ve been diagnosed with hypermobility and inflammatory...

Anyone have lower back pain NOT lupus nephritis?

Hi. I am new here. I was diagnosed with UCTD fifteen years ago--after positive ANA (homogeneous and speckled patterns), positive anti-dsdna, and positive Lupus anticoagulant and Anticardiolipin. I did well...

Peripheral neuropathy

Has any dealt with peripheral neuropathy? It started with my feet and then my hands and now it seems it is attacking my skin all over my body. My skin...

Shortness of breath

Hi, I hope you are all surviving this winter. I just have a question and wanted to see if anyone else experienced shortness of breath during a flare? Seems it...

Hair loss

My daughter’s been diagnosed with stage 2 lupus and along with other issues she is suffering hair loss. I wondered if anyone else here suffers this and what was a...

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