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Read conversations, start a discussion, and connect with others about Lupus.

Angry Much 😡

What do you do when you get so frustrated and angry with your body because it either doesn’t operate how it used to or won’t do what it needs to...

What helped my lupus

Update: I'm having lupus, affecting my heart, after I started walking about 20k meters every day (First 7 days, now only 10K in the forrest in the morning), since I...

Facial rash

I woke up 5 weeks ago with a rash on my face. After treating it at home for a few days I went to my primary. She started with trying...

Pre lupus

I went to the doctor and they did blood work and my ana was postive for lupus some of my blood work didnt show all signs. Im confused don't understand...

Face Symptoms and Steroid Side-effects

This post was originally written by a community member (@jan1956) as their status update and has been reposted in a forum format to encourage community conversation and support! "Hi I...

Avise Blood Panel

Hi, I am brand new here and wanted to get your thoughts on this. I am 42 and I've been having bilateral joint pain, muscle pain, and neuropathy in both...

Financial assistance especially in emergencies

What kind of emergency assistance especially in emergencies to maintain minimum of standard s of living is there available and how do we find it...

How do I talk to my rheumatologist?

Hi! I'm a new member and have, over the past few years been diagnosed with PsA, Ankylosing Spondylitis, Raynaulds, Asthma, and SVT. And I use to have a spot on...

Live shingles vaccination for lupus patients??

Anyone had experience of live or non live vaccinations for shingles. Any side effects??...

Lupus diagnosis

I looked back on my medical diagnosis over the years and individually each diagnosis culminates to a final diagnosis of Lupus and I wonder why Dr. weren’t able to give...

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