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Read conversations, start a discussion, and connect with others about Lupus.

Dermatitis

Hi everyone, I have some symptoms resembling Lupus and a positive ANA blood test and inflammation- but haven't officially been diagnosed with anything. I'm wondering if dermatitis on the fingertips...

Diet

I have Lupus/Fibromyalgia.i know I should eat a well-balanced diet, but I have no appetite, and most days I'm too exhausted or in too much pain to think about food...

Malar Rash?

This is my first time here. I’ve been struggling to find reasons for the way I have felt for a long time. I have family history of RA and have...

Covid long hauler and lupus

I am an 80 year old man being tested now for lupus, and the probability is high that I have the disease. I'm a covid long hauler, and thought the...

Inflamed

They took me off steroids after 13 yrs. Been 3 months now. Lupus blood work is good. But my body is so very inflamed. Hard to even dress myself. When...

Lupus Awareness Month

What has been the one thing you’ve learned during lupus awareness month, so far, that you didn’t know before?...

I got a question ❓

Ok I've been so sick in and out hospital. And finally they said I have lupus. I've never even heard of that. Well I lost almost all my hair. My...

Plaquenil and mylar rash

Hello Everyone 🙂, I've been dx'd with RA, Psoriatic Arthritis, and Hashi's for almost 10 years now. My Dr and I both suspect Lupus (despite negative ANA). She prescribed Plaquenil...

What is the first visit like after Lupus Diganosis

What can I expect for the first appointment to my Rheumatologist First...

First Rheumatology appointment

Hi everyone! I have my first Rheumatology appointment tomorrow- I had to wait over a year for this- so it been a long wait- (Canada universal medical ;)). I am...

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