Forums

Read conversations, start a discussion, and connect with others about Lupus.

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What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...

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Do you wear a medical alert bracelet?

Do you wear a medical alert bracelet for lupus or any other comorbid conditions? Has it ever come in handy or helped...

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Skin rash and hives

Hi I recently broke out in hives and a rash. It started on my neck and weirdly enough it spread to my...

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Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us...

Active 4 days ago

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Active 7 days ago

Calcinosis cutis

I have had SLE for 36 years and have developed, amongst many other things, calcinosis in my finger joints and most severely...

Active 7 days ago

Lupus Plus: Do you have additional health issues?

What are other health issues you face besides your lupus diagnosis?...

Active 7 days ago

How do you handle the heat when wearing so much clothes to protect your skin from the sun?

Can you share what tips work for you for the hotter months in terms of clothing choices, cooling devices or general tips...

Sjogrens

I have had lupus for 6 years which my rheumatologist assures me is sub cutaneous and is not systemic. In the last...

Shame and Guilt

Do you have shame or guilt when needing to rest?...

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