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Read conversations, start a discussion, and connect with others about Lupus.

Active today

Flares, Dizziness, Sun

I have been diagnosed with 5 autoimmune disorders, with test and 2 medical specialist, for 14 years. I have SLE Lupus involving...

Active today

Chest Tightness from Sun Exposure

Anyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors...

Active today

Mouth sores/ulcers

One of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to...

Active yesterday

I finally am diagnosed but it took 35 years

I was pretty sure for 20 years I had an autoimmune disease, but my ANA was negative and my doctor refused to...

Active yesterday

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

Active yesterday

Multiple Pills and how to take them?

I have been diagnosed with SLE since 1997 but had symptoms before the diagnosis. I now have a list of other problems...

Active yesterday

Am I the only one that feels guilty for not being able to work?

Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I...

Active yesterday

Rituximab Infusions

I have had SLE since I was 30. I am now 66. My flares are becoming more frequent and so I am...

Active yesterday

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real...

Active 2 days ago

"Planned Underachievement"

Extreme fatigue was one of the symptoms (along with Raynaud's and sunlight sensitivity) I had when first diagnosed with Lupus about 10...

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