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Forums

Read conversations, start a discussion, and connect with others about Lupus.

Support

What support groups or resources have you found most helpful on your lupus journeys?...

How do I explain this to my family?

My health has been on a downhill slide for about three years. I need to enlist more help from my adult children with household and outdoor work. I was very...

Covid Vaccines

Are any of you on Hydroxychloroquine and are not getting the Covid vaccine? I had Covid (w/double pneumonia, etc), a year ago, and now am suffering w/Post Covid Syndrome, and...

Curious…Food changes?

Hi, I have been reading a lot of the comments about all you amazing people! I just want each and Everyone to know, Each of You are seen, I See...

What helps you cope?

Lupus can be physically and emotionally draining. What are some things that help you cope on tough days?...

ANA 1:160 possible diagnosis

Still not completely diagnosed with lupus but doctor started me on hydroxyxhloroquine. I’ve had positive ana for about 5 years and hip pain that long as well. Hips hurt worse...

I Feel Like I Have Lupus but Bloodwork is "Normal"

Hey everyone, I feel so lost at the moment and feel so frustrated, overwhelmed and down. Since October my hands and wrists have been hurting so much and randomly go...

Dermatitis

Hi everyone, I have some symptoms resembling Lupus and a positive ANA blood test and inflammation- but haven't officially been diagnosed with anything. I'm wondering if dermatitis on the fingertips...

Diet

I have Lupus/Fibromyalgia.i know I should eat a well-balanced diet, but I have no appetite, and most days I'm too exhausted or in too much pain to think about food...

Malar Rash?

This is my first time here. I’ve been struggling to find reasons for the way I have felt for a long time. I have family history of RA and have...

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