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Read conversations, start a discussion, and connect with others about Lupus.

2 with Lupus

We lost both mother with Lupus how do you cope?...

Misdiagnosis

I have had Benlysta, Hydroclorquine, Methotrexate, and Predisone for over 7 years. I was diagnosed with SLE. Last month the doctor who replaced my Rhuemtoidlogist told me I DO NOT...

Frustration

I had a positive ana test last May and I was told I had lupus. Then I was told by the doc that it is not lupus. I have been...

Methotrexate injections

I have just started (4 weeks) on 10mg methotrexate by injection. My problem is I am having severe uncontrollable bouts of diarrhoea. I'm afraid to leave the house at the...

Benlysta - or what?

There are so many drugs out there, but my symptoms are mild (from what I've been reading). I'm on the (standard) hydroxychloroquine (aka Plaquenil) for a year now. My MD...

Cutaneous lupus

Can it spread from one limb to another by contact such as crossed legs on my own body? I understand it's not contagious so probably not, but it appears to...

Dealing with Siblings

I was diagnosed in Dec. 2022. It has been a swift and complicated time since then. I have been diagnosed with Stage 2 kidney disease, cyst on kidney, bladder infection...

Could these antigens be lupus?

ENA screen contains the following antigens: SS-A/Ro52, SS-A/Ro60, SS-B/La, U1RNP, Sm(D), Scl-70, Jo-1 and CENP-B These are the results of my blood test....

Plaquenil

Should a Lupus patient be taken off of Plaquenil entirely just because of no complaints or bad blood work? My Rheumatologist recently decided to stop prescribing Plaquenil (200 mg once...

Hi all. I need advice with Anti SS-A-RO reading. Mine came back at 91.

I’m new to this site. And I would great fully appreciate any advice concerning my very high reading of 91. For my SS-A -RO reading. Currently I’m on Amgevita 40mg...

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