Support What support groups or resources have you found most helpful on your lupus journeys?...reactionsrepliesCoping
How do I explain this to my family?My health has been on a downhill slide for about three years. I need to enlist more help from my adult children with household and outdoor work. I was very...reactions5repliesCaregivingFriends & Family
Covid VaccinesAre any of you on Hydroxychloroquine and are not getting the Covid vaccine? I had Covid (w/double pneumonia, etc), a year ago, and now am suffering w/Post Covid Syndrome, and...reactions11repliesCoping
Curious…Food changes?Hi, I have been reading a lot of the comments about all you amazing people! I just want each and Everyone to know, Each of You are seen, I See...reactions2repliesSymptomsAwarenessDiet & Nutrition
What helps you cope?Lupus can be physically and emotionally draining. What are some things that help you cope on tough days?...reactions40repliesAwarenessCoping
ANA 1:160 possible diagnosis Still not completely diagnosed with lupus but doctor started me on hydroxyxhloroquine. I’ve had positive ana for about 5 years and hip pain that long as well. Hips hurt worse...reactions1reply
I Feel Like I Have Lupus but Bloodwork is "Normal"Hey everyone, I feel so lost at the moment and feel so frustrated, overwhelmed and down. Since October my hands and wrists have been hurting so much and randomly go...reactions6repliesButterfly RashDiagnosis
Dermatitis Hi everyone, I have some symptoms resembling Lupus and a positive ANA blood test and inflammation- but haven't officially been diagnosed with anything. I'm wondering if dermatitis on the fingertips...reactions4repliesButterfly Rash
DietI have Lupus/Fibromyalgia.i know I should eat a well-balanced diet, but I have no appetite, and most days I'm too exhausted or in too much pain to think about food...reactions1replyDiet & Nutrition
Malar Rash?This is my first time here. I’ve been struggling to find reasons for the way I have felt for a long time. I have family history of RA and have...reactions5repliesButterfly Rash