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Read conversations, start a discussion, and connect with others about Lupus.

Covid long hauler and lupus

I am an 80 year old man being tested now for lupus, and the probability is high that I have the disease. I'm a covid long hauler, and thought the...

Inflamed

They took me off steroids after 13 yrs. Been 3 months now. Lupus blood work is good. But my body is so very inflamed. Hard to even dress myself. When...

Lupus Awareness Month

What has been the one thing you’ve learned during lupus awareness month, so far, that you didn’t know before?...

I got a question ❓

Ok I've been so sick in and out hospital. And finally they said I have lupus. I've never even heard of that. Well I lost almost all my hair. My...

Plaquenil and mylar rash

Hello Everyone 🙂, I've been dx'd with RA, Psoriatic Arthritis, and Hashi's for almost 10 years now. My Dr and I both suspect Lupus (despite negative ANA). She prescribed Plaquenil...

What is the first visit like after Lupus Diganosis

What can I expect for the first appointment to my Rheumatologist First...

First Rheumatology appointment

Hi everyone! I have my first Rheumatology appointment tomorrow- I had to wait over a year for this- so it been a long wait- (Canada universal medical ;)). I am...

Who do you recommend?

I'm Penny and I live in Portage MI, and I was diagnosed last year Feb of 2022 with lupus. I'm also an Avon Representative and want to do a fundraiser...

Lupus and Cutaneous Mastocytosis

Hi I have had SLE since I was 17yrs old. I am now 67 and a year ago started having severe hives. After having allergy skin tests coming back negative...

Body pain/ flare up

I take 5mgs of prednisone every day. I hurt every day and it seems that even my diet affects my body. I get what I call rolling flare ups. Constantly...

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