My worst flare up yetI recently had my worst flare-up yet. Does anyone know what I should do that can help me? I was suffering from severe headaches, body aches and pain down my...Reactions 0 reactions Comments4 repliesCopingTreatment
living with multiple auto immune disordersI've recently been diagnosed with Lupus and started on Benlysta. Before I started with this rheumatologist, the previous one diagnosed me with psoriatic arthritis and I was on Remicade for...Reactions 0 reactions Comments1 repliesCopingDiagnosis
Does anyone have any experience with lupus induced by anti-tumor necrosis factor (TNF) agents?In 2018, I was diagnosed with drug-induced lupus after three infusions with Infliximab for Crohn's disease. I was told that the symptoms would resolve fairly quickly after stopping the drug...Reactions 0 reactions Comments4 repliesDiagnosisHealthcare Team
Need adviceI was recently diagnosed with lupus and I am currently am on plaquenil twice a day. I have been on this medication now for a total of 1 1/2 months...Reactions 0 reactions Comments4 repliesTreatmentFatigue
Do you get to share your opinion about lupus care?Many living with lupus feel misunderstood by their providers. Last year, the survey this community responded to revealed important findings on the struggle to get a diagnosis, issues related to...Reactions 0 reactions Comments4 repliesAwareness
Facial Rash Hi, I have been diagnosed with Lupus after having a biopsy done on my face due to a facial rash. Would anyone be able tell me the name of the...Reactions 0 reactions Comments1 repliesButterfly RashAwareness
Fixing my profile picture Hi, I am brand new to this site. I did a profile picture and it is sideways. How do I straighten it out. Thank you for the help....Reactions 0 reactions Comments3 repliesTips & Advice
Is anyone coping with myocarditis?Community members are asking about a recent myocarditis diagnosis. Does anyone else experience this? How do you cope?...Reactions 0 reactions Comments0 repliesSymptoms
rheumatologistI'm moving close to Madison Wisconsin and need a new rheumatologist. Any suggestions?...Reactions 0 reactions Comments1 repliesHealthcare Team
Lupus Awareness Month 2021What is the most important thing you can think of to share about lupus awareness? What do you need people to know about your lupus journey?...Reactions 0 reactions Comments7 repliesAwarenessSymptomsDiagnosis