SP55
I feel awful… my shoulders, legs, neck and head are so achey. Feel like the flu aches, but my primary care physician said my blood work is all normal.. do I get a second opinion from a rheumatologist? My muscles and joints feel on fire and spasm often.
KevinLNeely Member
It never hurts to get a second or third...or tenth opinion. The "spasms" to me would be an indication that something is off. Everyone is different and it could be something non alarming but you'll never be sure until you're certain or until it's too late. It was quite a battle for me to learn what was going on. What finally pushed me was whenever my sister passed away a couple years ago at 30 years old from organ failure attributed to misdiagnosed lupus and she has similar issues I was dealing with. I was working as master electrician at the local power plant and kept feeling like you stated and then I started getting facial rashing and my mouth went nuts with ulcers and thrush. I can't tell you how many times the doctors and even "specialists" would accuse me of lying about my symptoms and saying I'm too young to have anything like that wrong with me. It can be a real depressing thing just getting a proper diagnosis. Many times my blood work had come back as "fine" one day and then i'd wind up in the hospital feeling like i was on my death bed then they would treat me like i was a "junkie" and boot me out the door and then the same day another doctor would discover concerning results and ANA positives. I'm not going to bore you with the details but you know what your body feels like and it's not going to show all the time but if you feel different and unwell then make sure you push against the doubting until you're certain. It could make the difference between an early end like my sister had or being excited to make it to 33.
Racquel H. Dozier Moderator & Contributor
Erin Rush Community Admin
Hi,
I am so sorry you are experiencing symptoms but do not have a diagnosis, yet. I agree with
Best, Erin, Lupus.net Team Member.
Racquel H. Dozier Moderator & Contributor