This is my first post, I have often wanted to join such a community but afraid to follow my desire.
I was diagnosed many years ago with CFS, then some years on another doctor said that a diagnosis was wrong and his opinion I was suffering from fibromyalgia or lupus … he said at the time he couldn’t be sure.
I have always worked very long hours and being a busy active person when I was younger and nothing seem to stop me, I was never up or down, however, out of the blue after a motorway accident, my recovery was taking longer than it should of. One thing led to another and I became so unwell. I was virtually unable to work not a great position to be in when you work for yourself.
Oh, and have two young children to bring up a mortgage to pay and all the rest of it. I had every symptom for lupus apart from weight loss which seemed to stabilise. I am the specialist doctor told me I was suffering from a flareup and I had to accept this and not try to fight it. However, my general practitioner local GP told me I was needing to pull myself together and get on with things.
And frankly, I could not believe my ears, and such comments are absolutely destroyed me. Well time did pass and I did seem to recover, not fully, but enough to continue working. Many years on I am still self-employed and have suffered with lupus symptoms over the years and have suffered many flareups however, with the passage of time more symptoms have appeared, and my overall health has gradually got worse .
several weeks ago, during the night, I was so fearful of the future, being in the midst of a flareup and unable to cope with the pain I am ashamed to admit it, but I did not want to be here anymore.
I live alone, I do not know a lot of people but tend to scour the Internet for any new developments in finding a cure and I came across a post on medical marijuana. Watching myself deteriorate and knowing it is only a matter of time before I will be wheelchair-bound and unable to carry on working. I have already. changed my business model suit my condition., but even that is becoming untenable. I decided to join this forum, so I might talk to other persons who suffer the same as I do, and was hoping someone may have tried medical marijuana. The painkillers I am on do not work unless I overdose.