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Read conversations, start a discussion, and connect with others about Lupus.

Active today

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Active 3 days ago

Abdo symptoms

Does anyone suffer with abdominal symptoms with their lupus I have been exhausted for 4 weeks. Having a CT scan tomorrow and...

Active 3 days ago

Digestive problems

Anyone have problems with the digestive track? I have been on antibiotics for about 10 months now and I feel horrible and...

Active 3 days ago

Mouth sores/ulcers

One of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to...

Active 3 days ago

Family Support

How do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus...

Active 3 days ago

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

Active 4 days ago

Dry mouth with watering

Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I...

Active 6 days ago

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...

Active 6 days ago

Always sick

Does anyone else's family always complain about you being sick?? If I can't go somewhere if I'm sick and they just don't...

Active 7 days ago

Sinius problem, hearing problems, feeling awful.

I've googled and it does say you can have fullness in your head, talking is scratchy, hearing is like you're in a...

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