Forums

Read conversations, start a discussion, and connect with others about Lupus.

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How do you handle the heat when wearing so much clothes to protect your skin from the sun?

Can you share what tips work for you for the hotter months in terms of clothing choices, cooling devices or general tips...

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Do you wear a medical alert bracelet?

Do you wear a medical alert bracelet for lupus or any other comorbid conditions? Has it ever come in handy or helped...

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Constant fatigue

Daily, I am extremely tired. Does anyone have tips to help?...

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The Significance of Lupus Awareness

Why is Lupus awareness important to you? What should others know about living with lupus?...

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Chronic UTI’s & lupus nephritis

I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently...

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anhidrosis

Is Lupus and anhidrosis connected? I haven't gotten a diagnosis yet but I don't sweat like a normal person. I sweat very...

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pain

DO NOT ever fell guilty about falling asleep from midday t mid-afternoon, i just say to people its part of my illness...

Active 3 days ago

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Active 3 days ago

"Planned Underachievement"

Extreme fatigue was one of the symptoms (along with Raynaud's and sunlight sensitivity) I had when first diagnosed with Lupus about 10...

Active 4 days ago

After Flare Self-Care

It's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after...

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