Tilted Kidneys and diagnosis
Hi everyone.
I’m learning about Lupus, being referred to rheumatologist and my head is in a spin but also making sense why I’ve been so bad for so long. I have had joint and muscle pain for many years, up and down, on and off including pleurisy more times than I can remember. Almost all urine tests show blood and or proteins but nothing has ever been done properly. I did find out I have tilted kidneys. No one told me but it seems it was a side note later mentioned. Does this tie in with lupus nephritis? So worried and hoping that I get some answers soon.
Hoping to get some more knowledge on this and change my diet but that’s confusing too. I’ve heard gluten and dairy free would be good but also to restrict protein. That’s a lot to take in and change!
, I am so sorry to hear about all the pain and discomfort you have been experiencing for years without answers! The early days of diagnosis can be especially overwhelming. This article has some tips shared by other community members of things they with they knew when they were first diagnosed: https://lupus.net/living/newly-diagnosed-tips. In terms of your kidney concerns, lupus is associated with several kidney complications. While I haven't heard about experiences with tilted kidneys, everyone's body and lupus journey is unique to them. This article shares some of the kidney issues commonly associated with lupus nephritis: https://lupus.net/nephritis When it comes to diet and nutrition, again, everyone's body is different! Since lupus leads to inflammation and swelling in the body, some people have found that adopting an anti-inflammatory diet helps them manage their lupus flares. There is some information about what foods have anti-inflammatory properties: https://lupus.net/living/nutrition and some tips for incorporating these foods into your routine on a budget: https://lupus.net/living/anti-inflammatory-diet. Please know that while your body and lupus journey is unique to you, you are not alone in this fight! We are here to listen and support you along the way. You said it best, there are so many considerations and changes to take in. Just take it one day at a time and please reach out with any other concerns or questions that arise along the way.
Sending gentle hugs,
Gabby (team member)thank you for your reply. I will be checking those links you left. It’s great to have some support and pointers. I actually feel relieved at the moment. Like I finally have an answer. A diagnosis though not yet confirmed makes sense for all my problems for so many years and isn’t a surprise. The opposite in fact. I feel calm and settled and more focused than ever in changing my diet. , YES! I totally hear you. One of our health leaders wrote an article about similar feelings of relief: https://lupus.net/living/diagnosis-acceptance. So many lupus warriors experience years of not being taken seriously or being repeatedly misdiagnosed before finally getting an accurate answer. I hope this clarity leads to you finally getting on a treatment plan that will help ease some of your discomfort and pain. Keep us in the loop! Thank you for being here and sharing with us.
Gabby (team member)
it’s hard to say everything that’s going on can be so many different things. It’s best to speak with your doctor to sort it all out. It can be so scary to wait and see so I’m sending you gentle hugs and holding space that you get answers soon. ~Racquel~ lupus.net team member
