Lupus and infraread sauna?
Hi I am Colleen Torres
I am new at this forum,
I have been living with Lupus, Fibromyalgia, Hashimoto's & Osteoarthritis for a while now. The pain is getting intolerable. I'm miserable and I don't like the person I've become.
What does everyone take for pain that gives you relief?
Also, a lot of people in my other support group recommend infrared sauna. But I am not sure if it is going to work also I need to know the cost.
Please share your experience about infrared sauna?
Thank you!
Hi @colleentorres I am so sorry you are experiencing that. While you may get feedback from the community on personal experience, it’s important to note that treatments can work differently for different people. We definitely encourage you to speak with a doctor or specialist, if you haven’t already, about your treatment-related decisions, and we commend you for reaching out to the community as well. We hope you get all the information you’re looking for! - Geri (lupus.net, Team Member)
I use a lot of meditation. Sometimes all I can do is ride out the pain. I have found that the infrared saunas bring on flares for me. I would definitely ask your doctor if they believe it is something you should try. I hope you find some relief. ~Racquel~ lupus.net team member yeah it doesn’t help me too much. I had to find out the hard way though. I go in for only 5 minutes and that’s enough for me to get those pores open a little but not get thrown in a flare. ~Racquel~ lupus.net team member 
that’s good to know. I won’t do it! I will learn from other’s experiences!
Amber (lupus.net team moderator)
I have intolerable pain "Waves" as I call them, they come out of nowhere and go from a 0 to a 10 accompanied by a migraine. I sometimes vomit but I'm in bed with tears streaming down my face wishing I would just die already. So yes the pain! It completely wipes me out. I was diagnosed and got a letter in the mail with my results from blood work telling me I didn't need to be seen for another year! I take 3-4 antihistamines, 1 muscle relaxer, (Tizanidine), 3 rapid release Tylenol, 1 Imitrex (sumatriptan) migraine medication and 1 tablet of dissolve under the tongue nausea medication called Ondansetron. I fall asleep for about 1-2 hours and wake up and it's either all gone or down to a level 2-3 and tolerable. It works nearly Everytime and have been doing this for 6 years as I've been misdiagnosed for 18 and to damn near every specialist out there. After time you figure out what works and what doesn't. Although I hate taking pills and do as much natural healing through supplements and eating good. I'm disabled by all this and HAVE to get relief after days on end or cycling pain waves or I wouldn't be alive texting this. Yes it's that bad, and no this isn't me feeling sorry for myself. Take Care.
, It sounds like you are experiencing a lot of pain, frustration and exhaustion right now, and who could blame you? To be told by a doctor that you do not need to be seen for another year after getting a new diagnosis and experiencing so many years of pain, unsuccessful treatments and misdiagnosis would be upsetting for anyone to hear. Were you able to talk with your rheumatologist about the diagnosis at all? If they are not making time to talk to you, it may be worth seeing if there are other doctors in your area that would give you the time and attention you deserve. It sounds like you are doing everything you can do in terms of healing both naturally and with pain medication. It's so important to not let anyone discount the pain you are experiencing or try to tell you how you should or should not be treating your pain. You know your body best! One of our advocates wrote an article about some of the "ups and downs" after she received her lupus diagnosis, including the "ups and downs" of pain and trying different treatments to find what worked best for her. I can hear the pain and exhaustion in your post. If there is anything we can do to help support you, let us know. I admire your strength and am sorry doctors have failed you for so long, you deserve better. Please take all the time your body needs to rest and be gentle with yourself 💜 We appreciate you being here and sharing with us.
Sending warm thoughts your way,
Gabby (lupus.net team member)
Hi diagnosed in 2013 I finally found a dr in 2022 who is my earth angel. My regiment of meds keep flare ups and pain livable. If they don’t listen or help move on. In fusions are an option as well I found helpful back a few years. Key is rheumatologist. Read the patient reviews!! Best of luck we have to be our own advocates. I had a Dr ? Me in diagnosis basicallly I lied haaa
., Finding a good Rheumatologist that really listens to you and supports you is so hard to do and essential. Reading patient reviews is a great tip. Thanks for sharing!
Gabby (team member)
