Scared to Start Benlysta
HI Everyone, Would like to hear others experience with Benlysta. I feel this is my only option left and I'm not sure what to do.
Thanks!!!
Hello , I would also love to hear others experiences with Benlysta . I am getting ready to try the weekly shots and I am not sure what do and fearful of the side effects.
Hi Lisa,
I so understand about being fearful of the potential side effects especially the infection rate. At this point, my joint pain is beyond what anyone should have to deal with, and OTC pain meds don't help.
Please post how it goes for you when you start the treatment.
cyn lou,
I appreciate you reaching out.
It's understandable to have concerns.
As we wait for others to chime in with their personal experiences, I thought I'd share these three articles with one of our patient leader's perspective: https://lupus.net/living/infusion-treatment-prepare, https://lupus.net/living/tips-benlysta-infusions and https://lupus.net/living/depression-benlysta
I wish you all the best and do hope you will keep us updated.
Kindly, Doreen (Team Member)Hi Doreen,
Thanks for the informative articles.
