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Read conversations, start a discussion, and connect with others about Lupus.

Benlysta - or what?

There are so many drugs out there, but my symptoms are mild (from what I've been reading). I'm on the (standard) hydroxychloroquine (aka Plaquenil) for a year now. My MD...

Cutaneous lupus

Can it spread from one limb to another by contact such as crossed legs on my own body? I understand it's not contagious so probably not, but it appears to...

Dealing with Siblings

I was diagnosed in Dec. 2022. It has been a swift and complicated time since then. I have been diagnosed with Stage 2 kidney disease, cyst on kidney, bladder infection...

Could these antigens be lupus?

ENA screen contains the following antigens: SS-A/Ro52, SS-A/Ro60, SS-B/La, U1RNP, Sm(D), Scl-70, Jo-1 and CENP-B These are the results of my blood test....

Plaquenil

Should a Lupus patient be taken off of Plaquenil entirely just because of no complaints or bad blood work? My Rheumatologist recently decided to stop prescribing Plaquenil (200 mg once...

Hi all. I need advice with Anti SS-A-RO reading. Mine came back at 91.

I’m new to this site. And I would great fully appreciate any advice concerning my very high reading of 91. For my SS-A -RO reading. Currently I’m on Amgevita 40mg...

Lupus or hives

Hi I have recently seen a rheumatologist for the first time after symptoms that I thought may be lupus. I keep getting out on antihistamines and steroids. The lumps, rash...

Tilted Kidneys and diagnosis

Hi everyone. I’m learning about Lupus, being referred to rheumatologist and my head is in a spin but also making sense why I’ve been so bad for so long. I...

I think I may have lupus

Hi. I have just come across this site and thought I would join for some advice whilst I was for my drs appointment tomorrow. So for the last probably 8...

Night Sweats

Hi community!! I am having trouble sleeping at night due to night sweats and pain. Every single night I am find myself tossing and turning……drenched in sweat all over. This...

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