Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about Lupus.

Who do you recommend?

I'm Penny and I live in Portage MI, and I was diagnosed last year Feb of 2022 with lupus. I'm also an Avon Representative and want to do a fundraiser...

Lupus and Cutaneous Mastocytosis

Hi I have had SLE since I was 17yrs old. I am now 67 and a year ago started having severe hives. After having allergy skin tests coming back negative...

Body pain/ flare up

I take 5mgs of prednisone every day. I hurt every day and it seems that even my diet affects my body. I get what I call rolling flare ups. Constantly...

What is wrong with me?

44 year old female. Seeking diagnosis. Long post warning. Looking for someone who has experienced similar symptoms/blood work. 1/23: Blood work (Quest) showed positive ANA, titer 1:1280, nuclear speckled, positive...

Rheumatoid arthritis in my hands and fingers

I don’t have the pain every day is this unusual sometimes I can barely lift my cup of coffee with one hand, my right hand as it is so terribly...

Lupus fog

What is the cause...

Questions to ask a rheumatologist?

For many managing lupus, it can be difficult to find the right doctor. What questions would you like to ask a rheumatologist that specializes in lupus?...

I suspect Lupus

Hi, I'm struggling in so many ways that I don't know where to start. I suspect lupus because I recently noticed that I am very sensitive to uv rays. Yesterday...

2 with Lupus

We lost both mother with Lupus how do you cope?...

Misdiagnosis

I have had Benlysta, Hydroclorquine, Methotrexate, and Predisone for over 7 years. I was diagnosed with SLE. Last month the doctor who replaced my Rhuemtoidlogist told me I DO NOT...

Categories

Select a category to find topics that interest you.