Hi I have recently seen a rheumatologist for the first time after symptoms that I thought may be lupus. I keep getting out on antihistamines and steroids. The lumps, rash and joint pain reduces for 3 days then I have a big flare up that’s persistent. I have not had a day without symptoms for nearly 5 months now and I am exhausted.
The rheumatologist told me that my ANA is negative although pathology have said it’s positive and crp has been consistently elevated. I have 3 different types of rashes, one of which I agree is hives, but the other two are not.
I am at a loss as to what to do. Any advice or help would be very much appreciated.
Joint swelling and pain (knees, hands, wrists, elbows, feet and ankles).
Flat ringworm like rash (darker)
Raised coin shaped rash (not itchy)
Facial swelling - eyes and cheeks and chin, sometimes lips
Struggling to find words
Forgetting everyday things
Chest pain that comes from the back
37.5mg steroids (on 6th day) to be reduced to 25mg for a week then 12.5mg for a week the 12.5mg every other day for a week.
20 mg Zyrtec in the morning
25mg phenergan at night (to replace 20mg Zyrtec as prescribed as it helps me sleep)
I don’t get the malaria rash specifically as seen in pics but the swelling and rash does appear across the cheeks nose and chin.
I am currently waiting for further blood results and mri’s on both hands and wrists.
Current suspected diagnosis: