What tips do you have for managing medications?Once I week I refill my pill boxes with my medications. It takes me about 20 minutes and I try to take...reactions39repliesTreatment
EyebrowsI have Permanent hair loss on my eyebrows, looks like alopecia, I had permanent make up done before I was diagnosed with...reactions5replies
Has anyone done the Benlysta infusions? I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I...reactions48repliesSide EffectsSleepTreatment
Feeling like my health care team doesn't care as much as they shouldDoes anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...reactions256replies
Second illnessI watch what I eat. I take all my medicine. Talk to your concern. But most important I read. Your dr. Cannot...reactionsrepliesAwarenessCopingDepression
ITCHING Does anyone have a problem with itching?? It's driving me crazy, mainly at night. Please suggest something that will work to make...reactions1reply
New Brand of HydroxychloroquineNew brand of hydroxychloroquine doesn't seem to be effective. I am experiencing pain in joints that I have not had with my...reactions15repliesTreatment
Methylpredisone Just energizes me unbelievable how it has me ups.But nighttime too until fatigue sets in.But we all will get there Then I...reactions2replies
Sun & LupusWhat's the best sunscreen ,I currently have Sun Bum and am going to the Dominican ....reactions44repliesSun Sensitivity
Type 1 Diabetes & Lupus?Do any of you also have Type 1 Diabetes? What Lupus treatments work for you that don’t mess with your blood sugars?...reactions21repliesCoping