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Read conversations, start a discussion, and connect with others about Lupus.

Newly diagnosed with questions

Hello all, I was recently diagnosed with lupus by my rheumatologist after years of Dr's and pain and searching with no answers...

Pushing for diagnosis

Hi, My 13yo daughter has been in and out of the doctors for the last two years. She has this recurring rash...

where are old timers?

I had 12 doctors who took 18 years to diagnose correctly. At 68 no one knows why I am still alive. Lots...

How can lupus impact complete blood counts? Just going for initial tests

Hi, I visited my doctor today as I have low neutrophils and low white blood count and this has been going on...

Diagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us.

If you've been diagnosed with TLE, we want to hear from you! People in the past have told us that their TLE...

Misdiagnosis

Far too often, it takes years between symptom onset and receiving an accurate lupus diagnosis. When did your symptoms begin versus when...

High heart rate

Hi there, I have been experiencing varying symptoms for many years. Hair loss, mouth ulcers, ache pains (particularly bad knees and hands...

Lupus? Rheumatoid arthritis?

Hi everyone im currently undergoing blood tests for rheumatoid arthritis and lupus. Im 37. My symptoms are *Swollen glands on my neck...

Test Results

I have a positive ANA Titer 1:640 Pattern Smooth Speckled and a positive Anti-double stranded DNA Antibody(SLE) 41. My doctor started me...

Disability

If you are getting SSDI What was the hardest part for you in getting disability? Was it proving the disability, being okay...

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