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Read conversations, start a discussion, and connect with others about Lupus.

Pushing for diagnosis

Hi, My 13yo daughter has been in and out of the doctors for the last two years. She has this recurring rash (see photo) which begins as a red malar...

where are old timers?

I had 12 doctors who took 18 years to diagnose correctly. At 68 no one knows why I am still alive. Lots and lots of permanent damage but no more...

How can lupus impact complete blood counts? Just going for initial tests

Hi, I visited my doctor today as I have low neutrophils and low white blood count and this has been going on for long enough that it's 'chronic.' (Neutrophils: 1.21...

Diagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us.

If you've been diagnosed with TLE, we want to hear from you! People in the past have told us that their TLE was rarely spoken about, and that finding support...

Misdiagnosis

Far too often, it takes years between symptom onset and receiving an accurate lupus diagnosis. When did your symptoms begin versus when you received your diagnosis? Was anyone here initially...

High heart rate

Hi there, I have been experiencing varying symptoms for many years. Hair loss, mouth ulcers, ache pains (particularly bad knees and hands and wrists), extreme fatigue, migraines, brain fog, and...

Lupus? Rheumatoid arthritis?

Hi everyone im currently undergoing blood tests for rheumatoid arthritis and lupus. Im 37. My symptoms are *Swollen glands on my neck for over a month *mouth ulcers *tired all...

Test Results

I have a positive ANA Titer 1:640 Pattern Smooth Speckled and a positive Anti-double stranded DNA Antibody(SLE) 41. My doctor started me on hydroxychloroquine but is not ready to give...

Disability

If you are getting SSDI What was the hardest part for you in getting disability? Was it proving the disability, being okay with being labeled disabled or something else?...

Possible Lupus diagnosis

Hello Everyone! I joined this group as I am waiting to get into a Rheumatologist next month. I wanted to just kind of run my issues and symptoms by everyone...

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