Forums

Read conversations, start a discussion, and connect with others about Lupus.

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Chest Tightness from Sun Exposure

Anyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors...

I finally am diagnosed but it took 35 years

I was pretty sure for 20 years I had an autoimmune disease, but my ANA was negative and my doctor refused to...

Mouth sores/ulcers

One of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to...

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

Multiple Pills and how to take them?

I have been diagnosed with SLE since 1997 but had symptoms before the diagnosis. I now have a list of other problems...

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real...

"Planned Underachievement"

Extreme fatigue was one of the symptoms (along with Raynaud's and sunlight sensitivity) I had when first diagnosed with Lupus about 10...

Constant fatigue

Daily, I am extremely tired. Does anyone have tips to help?...

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

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