Forums

Read conversations, start a discussion, and connect with others about Lupus.

Active 4 days ago

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Active 4 days ago

Lupus Awareness

Have you learned anything new about lupus that you didn’t know this lupus awareness month? Is there anything you have learned on...

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Featured

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us...

Grieving in Lupus

How to cope with a passing of a friend! Hard to wrap my head around a dear friend and having Lupus Flares!...

The Significance of Lupus Awareness

Why is Lupus awareness important to you? What should others know about living with lupus?...

Chronic UTI’s & lupus nephritis

I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently...

anhidrosis

Is Lupus and anhidrosis connected? I haven't gotten a diagnosis yet but I don't sweat like a normal person. I sweat very...

pain

DO NOT ever fell guilty about falling asleep from midday t mid-afternoon, i just say to people its part of my illness...

"Planned Underachievement"

Extreme fatigue was one of the symptoms (along with Raynaud's and sunlight sensitivity) I had when first diagnosed with Lupus about 10...

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