Forums

Read conversations, start a discussion, and connect with others about Lupus.

Active 7 days ago

Shame and Guilt

Do you have shame or guilt when needing to rest?...

FeaturedActive 7 days ago

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us...

Active 8 days ago

Grieving in Lupus

How to cope with a passing of a friend! Hard to wrap my head around a dear friend and having Lupus Flares!...

The Significance of Lupus Awareness

Why is Lupus awareness important to you? What should others know about living with lupus?...

Chronic UTI’s & lupus nephritis

I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently...

anhidrosis

Is Lupus and anhidrosis connected? I haven't gotten a diagnosis yet but I don't sweat like a normal person. I sweat very...

pain

DO NOT ever fell guilty about falling asleep from midday t mid-afternoon, i just say to people its part of my illness...

"Planned Underachievement"

Extreme fatigue was one of the symptoms (along with Raynaud's and sunlight sensitivity) I had when first diagnosed with Lupus about 10...

After Flare Self-Care

It's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after...

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

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