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Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

Cold Weather

I recently moved from a hot state to a cold state. There's bad weather (winter storm, winter weather advisory) here several times a month. I had no idea I'd have...

Hand pain

Hi everyone, Does anyone suffer from constant hand pain? My hands constantly hurt! My knuckles are getting big and I have a hard time holding onto things. I've had xrays...

Pain

Hi! I’ve been diagnosed with lupus since 2015. But I only flared up last year June. Since then, my pain never stopped. I am currently on Plaquenil but it is...

Red Light Therapy

I was wondering if anyone on here has tried the Red Light Therapy. I have but then I also react to the sun so I didn't know if the Red...

How can lupus impact complete blood counts? Just going for initial tests

Hi, I visited my doctor today as I have low neutrophils and low white blood count and this has been going on for long enough that it's 'chronic.' (Neutrophils: 1.21...

My body is swollen all the time.

I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since December 2022. My body is always swollen and...

Asthma and Allergies

It's been about 2 years since my lupus symptoms started. During that time, I've had several severe allergic reactions (anaphylaxis, rashes) to drugs and my asthma goes off the rails...

Should I be worried about unexplained bruises on the wrist, knuckle and elbow of one arm?

Hi all 👋 really happy to have found this community, as I’m a bit stumped and could do with another pov (or two!). I’ve been diagnosed with hypermobility and inflammatory...

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