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Read conversations, start a discussion, and connect with others about Lupus.

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...

Lupus

I have been sick for over a year. Unexplained exhaustion, pain in shoulders, back and knees. It literally hurts to take a deep breath. Now I'm having issues with my...

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

Pain Is A Ten

I have been dealing, again, with a flare for 2 weeks. Waiting on my Rheumatologist to call me back. My pain is 10 on most days. I know this because...

COVID19

Has anyone with lupus survived COVID-19?...

Hand pain

Hi everyone, Does anyone suffer from constant hand pain? My hands constantly hurt! My knuckles are getting big and I have a hard time holding onto things. I've had xrays...

Cold Weather

I recently moved from a hot state to a cold state. There's bad weather (winter storm, winter weather advisory) here several times a month. I had no idea I'd have...

Undiagnosed and meeting with primary care. Feeling nervous.

Hello. I have had odd symptoms on and off over the years but recently I put them all together and now wonder if it could be lupus. I'm hitting many...

Pain

Hi! I’ve been diagnosed with lupus since 2015. But I only flared up last year June. Since then, my pain never stopped. I am currently on Plaquenil but it is...

Red Light Therapy

I was wondering if anyone on here has tried the Red Light Therapy. I have but then I also react to the sun so I didn't know if the Red...

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