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Forums

Read conversations, start a discussion, and connect with others about Lupus.

Active 7 days ago

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

Hand pain

Hi everyone, Does anyone suffer from constant hand pain? My hands constantly hurt! My knuckles are getting big and I have a hard time holding onto things. I've had xrays...

Cold Weather

I recently moved from a hot state to a cold state. There's bad weather (winter storm, winter weather advisory) here several times a month. I had no idea I'd have...

Undiagnosed and meeting with primary care. Feeling nervous.

Hello. I have had odd symptoms on and off over the years but recently I put them all together and now wonder if it could be lupus. I'm hitting many...

Pain

Hi! I’ve been diagnosed with lupus since 2015. But I only flared up last year June. Since then, my pain never stopped. I am currently on Plaquenil but it is...

Red Light Therapy

I was wondering if anyone on here has tried the Red Light Therapy. I have but then I also react to the sun so I didn't know if the Red...

How can lupus impact complete blood counts? Just going for initial tests

Hi, I visited my doctor today as I have low neutrophils and low white blood count and this has been going on for long enough that it's 'chronic.' (Neutrophils: 1.21...

My body is swollen all the time.

I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since December 2022. My body is always swollen and...

Asthma and Allergies

It's been about 2 years since my lupus symptoms started. During that time, I've had several severe allergic reactions (anaphylaxis, rashes) to drugs and my asthma goes off the rails...

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