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Read conversations, start a discussion, and connect with others about Lupus.

Active 6 days ago

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...

Constant fatigue

Daily, I am extremely tired. Does anyone have tips to help?...

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

Chest Tightness from Sun Exposure

Anyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors, during the Sun's peak hours between 10 am...

My horrible journey with Lupus

Hello everyone. I was diagnosed with Lupus 8 months ago. It was a completely traumatizing exhausting journey until I finally able to get a proper diagnosis and a proper test...

Is there a connection between narcolepsy and lupus?

I know that fatigue and lupus go hand in hand, but I was telling my primary physician that I am always so tired and that if I sit or lay...

Rarely seem totally well

I have lupus (SLE) and I am on Rinvoq (immunosuppressant) and Hydroxycholorquine for over a year now. I tried Methotrexate (4 days a week in bed) and Imuran (fatigue, mouth...

LUPUS

LUPUS is a "ghost" ailment. I feel terrible inside. I wish I could wish it away. The symptoms are so uncomfortable. Hands ache or throb constantly, loss of balance, alopecia...

Cold Weather

I recently moved from a hot state to a cold state. There's bad weather (winter storm, winter weather advisory) here several times a month. I had no idea I'd have...

Fatigue!

There isn't a thing you can do to improve fatigue. I sometimes get up feeling fatigued! But usually I'm good waking up and getting out of bed. My days start...

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