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Read conversations, start a discussion, and connect with others about Lupus.

Active today

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

Active 2 days ago

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Active 5 days ago

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Active 7 days ago

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real...

Should I start methotrexate?

I’m 77 - have had three major joint operations in this past year; left rotator cuff, left partial hip replacement (not a...

Cannabis

Has anyone tried using medical cannibis for Lupus? I hear many great things about it but I would like to talk to...

Recently diagnosed with Lupus

Hi - Recently diagnosed with Lupus that attached the sac of my heart so my main discomfort/pain is in the chest area...

I have sle lupus and rheumatoid arthritis

I have sle lupus rheumatoid arthritis I am taking Saphnelo infusion hydroxychloroquine and Azathioprine I’m also going through perimenopause I heard about...

Abdo symptoms

Does anyone suffer with abdominal symptoms with their lupus I have been exhausted for 4 weeks. Having a CT scan tomorrow and...

Am I the only one that feels guilty for not being able to work?

Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I...

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