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Read conversations, start a discussion, and connect with others about Lupus.

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Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us...

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Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a...

Active today

Constant fatigue

Daily, I am extremely tired. Does anyone have tips to help?...

Active yesterday

Dry mouth with watering

Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I...

Active 3 days ago

Lupus symptom or not?

Just curious… does anyone else have times when their tongue is painful, like it’s been burned? When this happens there are no...

Active 3 days ago

Altered Senses From Lupus

Has anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here...

Active 3 days ago

Chronic UTI’s & lupus nephritis

I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently...

Active 4 days ago

I have sle lupus and rheumatoid arthritis

I have sle lupus rheumatoid arthritis I am taking Saphnelo infusion hydroxychloroquine and Azathioprine I’m also going through perimenopause I heard about...

Active 5 days ago

Digestive problems

Anyone have problems with the digestive track? I have been on antibiotics for about 10 months now and I feel horrible and...

Active 5 days ago

Lupus HELP

Why haven't we heard more about getting help with clinicals/Trials. Money for prescriptions. I was on Journavx and paying $30.00 with a...

Active 5 days ago

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

Active 6 days ago

coughing

I have a chronic cough and after many doctor appointments, noone can find the cause. Has anyone else been dealing with such...

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