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Read conversations, start a discussion, and connect with others about Lupus.

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Lupus Awareness

Have you learned anything new about lupus that you didn’t know this lupus awareness month? Is there anything you have learned on your lupus journey that has surprised you?...

Active today

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...

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Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

Active 5 days ago

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...

benlysta

i did 4 treatment of the iv infusion and lost all my hair and Im devestated and my doctor said it wasnt that and i told her im not taking...

How long did it take to be diagnosed with lupus ?

Did anyone had a spinal tap to confirm lupus...

Perception Change

How has your perception of lupus changed over time?...

Men with lupus

I just want to know how many men have lupus or am I alone here? ...

Unwanted Lupus Warrior Promotion

Hmmm!! Who would ever thought that I would be living a life as a Lupus Warrior who has been diagnosed almost three years. This new position has not been easy...

What does it mean to live with lupus?

What do you wish the world better understood about life with lupus?...

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