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Read conversations, start a discussion, and connect with others about Lupus.

What do you do?

Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...

Invisible Disability Discrimination

For those receiving SSDI benefits, what are your main symptoms and how severe are they? Have you dealt with others not believing...

Infusion Treatment

Today I had Benylista injection w a contrast,protects me from nausea But I know in my heart it went well Just want...

Pain after rest

When I arise in the mornings, usually the only thing that hurts is my neck. If I lie down on the couch...

Nobody Gets It

Sometimes I feel like a little old lady or a broken record when I hear myself saying my head hurts, or my...

What tips do you have for managing medications?

Once I week I refill my pill boxes with my medications. It takes me about 20 minutes and I try to take...

Eyebrows

I have Permanent hair loss on my eyebrows, looks like alopecia, I had permanent make up done before I was diagnosed with...

Has anyone done the Benlysta infusions?

I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I...

Second illness

I watch what I eat. I take all my medicine. Talk to your concern. But most important I read. Your dr. Cannot...

ITCHING

Does anyone have a problem with itching?? It's driving me crazy, mainly at night. Please suggest something that will work to make...

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