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Read conversations, start a discussion, and connect with others about Lupus.

Am I the only one that feels guilty for not being able to work?

Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I...

Universal Studios

I am about to go to Universal Studios with my family. I am so worried I will not be able to keep...

Perception Change

How has your perception of lupus changed over time?...

Stay positive and keep stress to a minimum

I got Lupus at 68 now 3yrs. I was fortunate to have Drs who diagnose quickly. Im taking a infusion every 28...

Recommend Centre of Excellence or Consultant

Hi my daughter is 30 and has been diagnosed with Lupus for some time now . My wife and i are very...

What are the terms to find a supportive partner

Hi Anyone who diagnosed with lupus as a kid and grew up with it and now got married.. how did you say...

State disability

How do you all feel about State disability? I’m trying for myself, but was turned down two times . I will be...

Recommend Centre of Excellence or Consultant

Hi my daughter is 30 and has been diagnosed with Lupus for some time now . My wife and i are very...

Rarely seem totally well

I have lupus (SLE) and I am on Rinvoq (immunosuppressant) and Hydroxycholorquine for over a year now. I tried Methotrexate (4 days...

Chest Tightness from Sun Exposure

Anyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors...

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