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Read conversations, start a discussion, and connect with others about Lupus.

Is there a connection between narcolepsy and lupus?

I know that fatigue and lupus go hand in hand, but I was telling my primary physician that I am always so...

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I...

Friends & Family

I was diagnosed with SLE when I was 25. My husband left me with 2 small kids and my family got sick...

Pain

Hi! I’ve been diagnosed with lupus since 2015. But I only flared up last year June. Since then, my pain never stopped...

Hydrochlorothiazide

Hi has anyone had any adverse reactions to this drug hydrochlorothiazide? Does it make SLE symptoms worse in any way? Just wondering....

Plans for Thanksgiving

What are your plans to keep yourself stress free during thanksgiving?...

What do you do?

Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...

Invisible Disability Discrimination

For those receiving SSDI benefits, what are your main symptoms and how severe are they? Have you dealt with others not believing...

Sleep Habits

How well do you sleep at night? What are your tricks to help you sleep better?...

Infusion Treatment

Today I had Benylista injection w a contrast,protects me from nausea But I know in my heart it went well Just want...

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