Forums

Read conversations, start a discussion, and connect with others about Lupus.

Active today

What do I tell my Boss

At work I am constantly overwhelmed and not sure what to tell my supervisor, when I’m good to do my job but...

Active today

Should I start methotrexate?

I’m 77 - have had three major joint operations in this past year; left rotator cuff, left partial hip replacement (not a...

Active today

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...

Active 2 days ago

sleep

how do you get a good nite sleep when the pain wakes you up? do not like sleep aids....

Active 2 days ago

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Active 2 days ago

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

Active 3 days ago

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as...

Active 3 days ago

"Planned Underachievement"

Extreme fatigue was one of the symptoms (along with Raynaud's and sunlight sensitivity) I had when first diagnosed with Lupus about 10...

Active 3 days ago

I have sle lupus and rheumatoid arthritis

I have sle lupus rheumatoid arthritis I am taking Saphnelo infusion hydroxychloroquine and Azathioprine I’m also going through perimenopause I heard about...

FeaturedActive 5 days ago

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us...

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