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Chronic UTI’s & lupus nephritis

I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently...

What are some tips for managing a chronic wound?

I have had a chronic wound on my left calf for 110 days now. I’ve been seeing a wound care specialist the...

Is there a connection between narcolepsy and lupus?

I know that fatigue and lupus go hand in hand, but I was telling my primary physician that I am always so...

COVID19

Has anyone with lupus survived COVID-19?...

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I...

tremors

Has anyone ever gotten tremors? Twice now, I have gotten tremors that were like my whole body getting the shakes uncontrollably, and...

Micardis/Telmistartin

Has anyone had any experience with hypertension and been put onto this medication and had side effects or weight gain/weight loss?...

Altered Senses From Lupus

Has anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here...

Cutaneous lupus

I have both systemic and cutaneous lupus. I’m wondering if anyone else out there with cutaneous lupus experiences skin shedding. I periodically...

Mouth sores/ulcers

One of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to...

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