Forums

Read conversations, start a discussion, and connect with others about Lupus.

Friends & Family

I was diagnosed with SLE when I was 25. My husband left me with 2 small kids and my family got sick...

How do you handle the heat when wearing so much clothes to protect your skin from the sun?

Can you share what tips work for you for the hotter months in terms of clothing choices, cooling devices or general tips...

Sjogrens

I have had lupus for 6 years which my rheumatologist assures me is sub cutaneous and is not systemic. In the last...

Lupus Awareness

Have you learned anything new about lupus that you didn’t know this lupus awareness month? Is there anything you have learned on...

Grieving in Lupus

How to cope with a passing of a friend! Hard to wrap my head around a dear friend and having Lupus Flares!...

Dry eyes and mouth

I found out that I had lupus in my late 20’s. I am now 59. It’s systematic and I also have shortens...

Hormone replacement therapy and lupus.

Has anyone had experience with hormone replacement therapy? Is it safe for lupus patients? Are there alternative treatments?...

Chronic UTI’s & lupus nephritis

I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently...

anhidrosis

Is Lupus and anhidrosis connected? I haven't gotten a diagnosis yet but I don't sweat like a normal person. I sweat very...

pain

DO NOT ever fell guilty about falling asleep from midday t mid-afternoon, i just say to people its part of my illness...

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