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Read conversations, start a discussion, and connect with others about Lupus.

Has anyone tried medical marijuana

This is my first post, I have often wanted to join such a community but afraid to follow my desire. I was diagnosed many years ago with CFS, then some...

What gifts would you want to receive?

Learning of a new lupus diagnosis can feel overwhelming. Some friends and family may want to help show support, but not know how best to show up. What gifts would...

Do you experience brain fog? Please share your experience with us!

Let's have a frank conversation about brain fog. Brain fog is often described as relentless, frustrating, and a major source of fatigue for up to 60 percent of people living...

Naturopathic medicine

Hello Warriors. Does anyone on the forum use naturopathic treatments, like meditation, exercise and nutrition? I have an appointment in a few days with a neurologist am not sure of...

Has anyone done the Benlysta infusions?

I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I haven’t had any other side effects besides fatigue...

Scared to Start Benlysta

HI Everyone, Would like to hear others experience with Benlysta. I feel this is my only option left and I'm not sure what to do. Thanks!!!...

Coping with the first year after diagnosis and tips for keeping track of symptoms

I'd love to know how those who have been living with lupus for a while made it through the first year(or more). Between all of the appointments, trying to keep...

Anyone else get hard, painful lumps in their armpits?

These are a fairly recent thing. This is the second time I’ve had them. I’m just assuming that they’re one more of the many weird things that happen to my...

Lupus and ebv

I was diagnosed with lupus a few months ago. Starting having lots of dizziness, lightheaded, and blood pressure dropping. Went in for follow up and they did blood work to...

Making family believe you really are sick

Does anyone else have their own family believe that there is nothing wrong with them and it's all in your head. This has caused a huge lump on my shoulder...

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