Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Tell us about your symptom and treatment experience. Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about Lupus.

Methotrexate or Imuran for Lupus

I was recently prescribed Methotrexate to bring my Lupus and Arthritis under control. Really not liking the choice of taking a chemo drug. Does it really work and does it...

Benlysta

Hi everyone, my journey began in 2009. I wasn’t formally diagnosed with Lupus SLE until 2014. I was in denial for a long time. I took hydroxychloroquine for several years...

sleep

how do you get a good nite sleep when the pain wakes you up? do not like sleep aids....

Assistance with ANA test results

I have been having symptoms of inflammatory arthritis for over 5 years. I get intermittent episodes of burning pain in my spine along with pain in front hip bones, shoulders...

Histamine intolerance

My newly acquired "allergy" problem is driving me nuts. We've used Singulair, prednisone, anti-inflammatories, antibiotics and other antihistamines. We've decided it is histamine intolerance. Now what? And, my heat intolerance...

Help me understand a little more about lupas

I've been having high fevers 1-2 a week, pouring sweat and freezing at the same time for hours. I've haven't been able to see a specialist yet and I literally...

Im still learning ...does anyone suffer with emotional issues due to lupus?

I was diagnosed last year although I believe I have had it a long time. The pain becomes unbearable at times but 60 percent of the time time it is...

How long does it take for an ANA result?

Hi! My journey has just begun. I am waiting for a second ANA test result, it's been over 2 weeks now. My C reactive protein came back high, and some...

Traitement bilumumab

Bonjour J'entame un traitement sous injection bilumumab Je suis très fatiguée avec des nausées. J'aurais aimé avoir des témoignages de personnes soignées par ce traitement...

“Almost” Newly Diagnosed

Hello everyone. I’m glad I found this community. I am in the process of possibly getting diagnosed due to lab results. (Ive tested positive or ANA Titer and Anti-dsDNA, etc)...

Categories

Select a category to find topics that interest you.